Livia's update (x-post)

mildlydelirious · #1 (**permalink**) 07-01-2008, 11:27 AM

We had her WBC yesterday. She had all of her shots so she's a crank-butt today.

My little squirt is up to 14lbs4oz, 26in and 43cm. So she's 25%tile, 50%tile and 75%tile.

Her doctor confirmed that he was glad she was in the DDD program in our state. She qualified with GDD (global development delays) to be in the state's early intervention program to receive whatever services she needs. We've already seen a speech and language therapist and next we are going to be seeing a physical therapist. The PT will let us know if we need an OT because Livia is still having difficulties eating solid food. Only one time in the last two months have I been able to get her to swallow more than a teaspoon or so of food.

Thank God my ped is more focused on progression though. He's more interested in watching if she's progressing, not where she's "placing" on the developmental scale. Olivia had a lot of things to over come after birth (including being born not breathing or moving and having to be resuscitated after an emergency C-section) And she is progressing. She's just not doing it at the speed that other kids do.

He wasn't able to tell me anything about her ears other than they were not occluded with wax. We are getting our referral for her ENT and her next tests.

This has all been pretty distressing and frankly has thrown me into a bit of depression. I am so sad that my little girls has so many things to overcome. And she just amazes me with how happy she is. And here I am worried to death that she may have difficulties that she will never overcome. KWIM? I don't mean to sound negative, but I guess it's a possibility. And I hate looking at the possibility. I prefer to think that no matter what goes on she'll grow up to be a happy, healthy, productive human being.

So, for us, we'll just keep moving forward and on to the next specialist! In the mean time the waiting

is so hard!

The good news is we got the go-ahead to stop the horrific Alimentum formula. We're moving to the Sensitive R.S. It's not like the Alimentum is stopping the reflux so he agreed to let us try again with the SRS.

Crud, I wrote half a book here. I think I need to go out and throw back a few

and get an attitude adjustment.

Anyone wanna come along??!

Too bad what I will probably really do is the laundry.

~m

JBB373 · #2 (**permalink**) 07-01-2008, 12:40 PM

As far as the eating I wouldn't worry too much (especially if your ped isn't worried). . . Jarrett who didn't have to overcome so much just recently went from refusing foods to eating full force and he just about 2 months older. I know several babies on the BIN board aren't eating more than a few spoons per day. Last night he ate salmon and spinich noodles. I found with him he didn't like non-organic foods (go figure I have a health conscious baby). What foods have you tried - it may be a texture thing as well.

Her growth sounds awesome and like you said she is progressing - in the end thats what matters. I know what you mean about being sick about the battles that your kids might have to face. You're doing all the right things and so much is overcome by early intervention.

Yeah about the formula switch I hope they find something to keep the reflux down soon - I believe Hannah finally turn the corner right around 8 months and by the way she didn't want anything to do with food until about 9 months (she was completely happy with her formula before that). She went straight from all formula to finger food. Hated all baby food.

Oh yeah, I would be happy to share some adult beverages with you - moving has me totally stressed out right now - the movers are coming tomorrow and we aren't close to being ready - yet here I sit on the message boards!
KUP I know with all that love and attention Livi will meet her full potential!

theluvof2moms · #3 (**permalink**) 07-02-2008, 04:15 AM

First I want to say Marian early intervention is the key and you are doing a wonderful job at staying on top of things and being knowledgable about things. You are one awesome mama!!!

Second, I have to agree with what jen said progress is key it is when they become stuck or regress that we have to start worrying, she had such a rough start she just needs a little more time.

As for the food, you know that could have a little to do with her reflux. I don't know alot about reflux but I know when we were asking docs about Baby Thao's situation they were very concerned about her developing a food aversion because of it. Right now it could be a little painful for her to eat the other foods, I would say keep trying but some of that issue could be due to the reflux.

I know that little girl is going to thrive but right now she knows she has the best mama in the world to just love and take care of her so she is gonna rest a little longer before she really starts driving you crazy.

Girl I would love to have a drink with you and Jenn!!!

Stay strong girls you'll get past it all with flying colors!!!

nicoleb · #4 (**permalink**) 07-02-2008, 05:43 AM

Ditto to what everyone said.

I agree, she has the best momma in the world, you will support her and open so many doors that would have never been opened had she not been chosen for you.

HUGS! Oh...and I'll take that drink with you.

leanrog · #5 (**permalink**) 07-02-2008, 02:09 PM

It sounds like that little sweetie has had a lot to deal with so far but it's so great that she has a mother that is so proactive. I'm glad that she is at least progressing and I'm sure she will turn the corner soon and start eating solid food.

mildlydelirious · #6 (**permalink**) 07-03-2008, 02:39 PM

You guys are just the best! I wish there was a better emoticon than

Olivia's NICU nurse was visiting today. She thinks Liv is doing great and is not worried that she is having difficulties eating yet. We have been working on just getting her tasting and sucking some different tasting foods of of her hands and toys right now. It seems to be working good for her!

The ped's office gave us the wrong referral for her ears so now we have to wait some more.

But all in all, after today's meeting with the nurse I am feeling great about her.

~m

*Mely1015*/Melissa · #7 (**permalink**) 07-10-2008, 11:49 AM

to what the girls said!

M, you are doing your best and don't worry life is too short for that so take one day at the time...God will guide you