Tobi's appointment update

christinecarebear · #1 (**permalink**) 05-09-2008, 04:55 PM

Well.......................... things went well!

The nurses and radiologists and doctors were GREAT!
I didnt expect to have that many people in the room at once.. 2 nurses for Tobi (to help position him and keep him still, 2 doctors, a radiologist and I think an xray tech. There were toys for him to play with, and they were all singing 'who are the ppl in your neighbourhood, in your neighbout hood, oh who are the ppl in your neighbourhood, their the ppl that you meet each day!) from sesamestreet.. they all were soo cherry and happy!

The 'procedure' was well...uncomfortable I think. they placeda catheter up his rectum and then taped his cheeks together. (he was NOT fond of that part at all)... then they hung a HUGE bag of the barium (cept it wasnt barium, it was something else,, i dunno). As they infused it, they do a live feed and tape it so they can see the liquid fill his intestines. I only saw it a few times cuz i was entertaining the lil man. they took pics of him on his side and on his back etc. then after they were done, they drained what came out freely (i couldnt beieve how much stuff goes up.. probably like a litre it looked to be)

then we waited for him to poop out the rest... heres where we had an issue. he didnt poop it out. he was so crampy, screaming and crying, and pulling his legs up.. didnt want anything.. SO the Doc had to get him to take a laxative to get him to 'go'. Well it worked TOO well... on the way home, he pooped and it went everywhere... DH met us at the subway station, and when we got home we discovered he pooped (only the liquid stuff) everywhere, it came out the side of his diaper down his legs and onto my car and his carseat! yumm!!!!!!!!!

he is doing fine now... he was such a lil trooper. and let me tell you....

I am so blessed to have just gone through this, there are some parents facing MUCH worse with terminally ill children.. it was heartbreaking... this one lil gir (4) was showing me all of her bravery beeds from chemo and radiation and bonemarrow and all the procedures she went throuh... such a brave courageous little soul.. poor thing.. but she was so happy.... made me smile.. i just love her and I dont know her.

DH didnt get to come, but there was only 1 parent allowed in anyways, so it really wouldnt have mattered...

all in all it was a good day! we should get the results next wednesday.. send your hopes for the best!!!!

LilLoveBug · #2 (**permalink**) 05-09-2008, 05:09 PM

What a brave little guy he is! I'm glad it went well, and I'll say a prayer that everything looks good on the results.

Good job Tobi!

kris · #3 (**permalink**) 05-09-2008, 05:58 PM

What a strong little one you have. I will also say a little prayer that he gets great results!

It's just wrong for children to be sick, I will never comprehend or accept it. They are so happy even through the worst of times. My dad produced the Hospital for Sick Children telethon for many many years. We met so many families over the years, you can't help but get attached, some don't end the way you want them to...I could still cry over some of the kids.

WSPMeg · #4 (**permalink**) 05-09-2008, 06:39 PM

I ll keep you all in my thoughts and prayers. What a good lil guy you have to put up with all that.

I know what you mean about having it ok...compared to others. G went into the pediatric heart center here for a murmur early on and there were some really sick children in there. Very sad.

Keep us posted on the results when you get them.

Hugs to you both.

Domino'sGirl · #5 (**permalink**) 05-09-2008, 07:15 PM

So glad to hear that it when well! The staff sound great... it always helps when they are good at what they are doing and are upbeat.

Tobi's a definit trouper! Sucks about the poop incident, but at least he got it all out!

Be sure to let us know the results as soon as you can. We'll all be thinking of you!

Dani · #6 (**permalink**) 05-09-2008, 11:50 PM

what a brave little guy... will be looking out for the results...

ReiWinters · #7 (**permalink**) 05-10-2008, 05:35 AM

Poor Tobi!!! I hope he gets some good results!

Lavender · #8 (**permalink**) 05-10-2008, 06:02 AM

Poor little guy but I"m glad he did well and that you had so much help in there. I hope you get some answers.

AmyAugTwins · #9 (**permalink**) 05-10-2008, 06:30 AM

What a big boy!! So glad all that went well and I'll be waiting to hear some results.............positive results!!!! I'll be thinking about you and sending LOTS of positive vibes your way!!

racechick24 · #10 (**permalink**) 05-10-2008, 09:33 AM

What a brave little man! I

the results are good and he won't have to have surgery after all!

I know what you mean about Children's hospitals...been there too many times already and I've seen so many sick kids.