Latest Update on my DH

Constance_13 · #1 (**permalink**) 10-30-2007, 01:31 PM

Greetings,

My DH is doing really well. He is feeling better and better a time passes. I think I am more worried that something will happen again then he is. He is very confident in his doctors and feels everything will be ok. He has been making changes in his everyday life style which he said were way over due but now had to be done. Small things but things he knew he was slacking on like eating properly instead of fast food every meal, getting out with friends and family more, being more active....stuff like that.

He has been having a really bad spell of head aches though

Since he has left the hospital he has only had 2 days with out a headache. Most days they are not bad or near his migraines BUT they are very regular. This has been a battle since before his stroke. The new med does not appear to be working like it should. The other bad thing is memory has been HORRIBLE. He has always had what you would class as a bad memory but this is so much worse then that. It has caused some frustrations between us as he thinks he has told me stuff and hasn't sooo I get mad and it’s a horrible circle. My pregnancy emotions are NOT helping at all either.

The only other physical side effects that seem to have come up are; he is having trouble with the vision in his right eye. It was never an issue before but since his stroke it’s been off. He neck and should are coming along fine as he has been working with a massage therapist to help get his motion back and it’s almost 100% already. It seems to have been left over muscle strain from when his body was in paralysis from the stroke. It does not seem to be permeate at this time though.

He had his follow up with the neurologist and they talked for just over an hour going over all his results and questions. Everything but two tests were in the normal range. The one test is being re-run as it’s only out of where the doctor wants it to be by 1 point. That is his cholesterol.....so really it’s not that height but the doctors what is below a certain point so we shall see when that comes back. The other test that showed something off with a peace / section on his DNA strand....now this is how it was explained and I am still a bit lost....he had blood work show that on his DNA strand there is a small peace that has an abnormality / defect on one branch.....now having just this one is fine and does not affect anything as there are two sections they look at and if both sections have this abnormality / defect then there is an issue with heart and stoke. The thing the doctor told him he needs to look into is me....if I have the "other" part that is abnormal then our baby could have challenges in his/her life. He said that I will need to take his results to my OB / our pediatrician and they can test both the baby and I for this to make sure we are in the clear. Now I have no idea what this mean for us and our baby....I need to get more info but the doctor did not seem to think it was a major deal....but it was something we defiantly needed to be ready for so we could handle it if it were present. As to the handling it part….I have no idea what is involved or what that means. Everything else was good and he was given the go ahead to resume normal activity again. They have no really answer as to why it happened and from all the results it should not happen again BUT really should not have happened in the first place. I think that is what scares me the most. The only other change is the doctor upped his meds and so far it seems to have made a difference on my DH’s head aches….time will tell though as he does have good period where he has very few. I just hope this is the answer for him….I hate seeing him in pain all the time.

This has been such an emotional rollercoaster and one of the most frustrating things to go through. All the info I get is relayed and even when I talk to the doctors they talk to me for 10 min VS an hour sooo obviously there is some information loss....I find that most aggravating part of all. Plus I do not hear all the explanations and am still lost as to what they found. I am hoping when I get copies of the blood work and talk to my doctor he will be able to explain it better. I just hope I do not have the marker as it is genetic….I pray I am clear as then the baby should be clear

More worrying I tell ya....I am tired of always being sooo stressed.

I am really struggling these days. I feel so weak and wish I was stronger. I have my good moments but the bad are still more and sometimes the tears just will not stop. The anger I have is horrible and I do not know how to get rid of it or release it. I am fighting some very dark moments and truly wish this was all over and I could just go home. Being stuck up here alone is so hard and the waiting on this last stage of our immigration is killing me. The not knowing is so hardest part of all and we seem to have a lot of uncertainties; We do not know if I will be allowed to go home, we do not know when the interview will be, we do not know if we will see each other for Christmas, in fact the worst one of all is we do not know when we will be together again period. I keep praying for strength to get through all this and help to have the immigration process approved...I just hope we hear something SOON.

Thanks for listening and all the support!!! It truly helps having ppl I can talk to and share all this with.

Sorry for the novel and the crazy emotional vent…..I have been trying to keep busy and keep my mind off all this but sometimes it’s just not possible.

mb80 · #2 (**permalink**) 10-30-2007, 02:18 PM

Hang in there Amanda! You are being so strong!!! Keep it up for you, your DH and that wonderful Baby! You know we all support you.

Mommie2Ava&Presley · #3 (**permalink**) 10-30-2007, 02:25 PM

Wow! Your plate is piled high with like a triple portion of worries.

I don't even know what to say. I will pray like crazy that this immigration thing gets settled so you can be with your DH who obviously needs you as much as you need him; being pregnant and all.

This is the part that gripes me to no end about immigration - the people that go through the steps the right way and get done like you have/ compared to the people who sneak in and cheat the system and end up getting all kinds of government subsidies and stuff.

So not fair! I live in Texas so I see the illegal stuff a lot more than it probably is seen up north.

So sorry I can't do more than send out cyber-hugs and prayers. Feel free to vent anytime. That is better for you and baby than keeping it bottled up inside.

Celi · #4 (**permalink**) 10-30-2007, 05:14 PM

So sorry that you have another thing to worry now

But hang in there! You baby need you to be strong as you are being!!!

mommy524 · #5 (**permalink**) 10-31-2007, 05:15 AM

Amanda - Be strong for the baby. I will keep you in my prayers.

Loopy Lou · #6 (**permalink**) 10-31-2007, 01:44 PM

Amanda, i just wanted to let you know i am thinking of you and to let you know that i think you have been so strong through all of this i know it may not feel that way all the time, but you are truly a strong person!

Take care of yourself and your little bean!

mommaphoebs · #7 (**permalink**) 11-02-2007, 07:26 AM

So sorry you have to go through all that, but glad your dh is doing better. Hope you'll be together soon.

2Joeys · #8 (**permalink**) 11-02-2007, 10:10 AM

Amanda, I'm so sorry that you and your dh have to deal with all this in what should be the happiest times of your lives.

I'm glad to hear that the Dr is fairly happy with your dh's prognosis though. I hope that he continues to improve.

Immigration is a giant pain in the bum! We've dealt with it both ways. I'm from Australia and we were married here in Texas while I was on a holiday visa. We had to go through immigration when we wanted to move back to Australia and then again when we decided to move permanently back here. It's costly, time consuming, frustrating and emotionally draining! We had to get back to Australia quickly as my mother had been diagnosed with cancer. So we needed to get approval for my dh to travel over there on a temporary visa and then apply for permanent residency once there. We hit lots and lots of road blocks and it didn't look like it could be done, but then I started contacting politicians. From small local councilors right up to the Prime Minister and everyone in between.

Lots of "I'm sorry for your situation, but I can't help." type replies, but one did take interest and then took the time to make some enquiries. He got us the permission we needed to travel back.

It wasn't a special favour or anything. He just found us the loophole that no-one else had bothered to find out or tell us.

So hang in there. Don't stop that fight of trying to be together as soon as you can.