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  #1 (permalink)  
Old 10-21-2007, 09:14 AM
LauraH's Avatar
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Default Domperidone?

Hi ladies,
Do any of you know anything about Domperidone?
I am trying to induce lactation so I can BF my adopted child due in Feb. I showed my doc the protocol for lactation & she prescribed Domperidone as the protocol says. The problem is my pharmacy doesn't have it, never heard of it. Soooo, I did some searching around & I am getting weird & conflicting info such as it's illegal, I can order it from a pharmacy in NC only if they bill it as a compound (whatever that means) or I have to order it from Canada!
Anyone???
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Old 10-21-2007, 11:44 AM
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Default Re: Domperidone?

Order it from New Zealand http://www.inhousepharmacy.com/digestive/motilium.html.

The generic form is called Motilium. It is a wonderful miracle drug and I've taken it since Addi was 10 weeks old. She's now over 8 mos.

It is not FDA approved and so in the US some compounding pharmacies will still make it for you and some will now. It is very expensive this way and much easier to get in larger quantities which you will need to induce lactation if you order it. I know it's a little scary but I'll be happy to share my entire experience with you if you need some more assurance.
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Old 10-21-2007, 11:58 AM
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Default Re: Domperidone?

Kenda -
I would LOVE to hear your entire experience! Any suggestions would help. I have found that everyone is supportive of me trying to induce lactation but no one knows anything about it. I'm worried that I am getting a late start. When I went in for my consult 3 months ago the Dr found a lump in my breast & we had to make sure that was taken care of. Everything turned out fine (just fatty tissue) but now I only have 3 1/2 months left.
I'm not too optimistic about this workign as my body seems to be unhelpful in whatever I want to do (2 years TTC to no avail) but I want to give it a try.
Thanks so much!
BTW - Addison was on the top of my list of girls names!
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Old 10-22-2007, 09:06 AM
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Default Re: Domperidone?

I'm sorry I didn't get back to this. If you read my other thread then you know we've had a rough couple of days.

Ok, so in the beginning nursing went well, but then Addi just started wanting to nurse ALL the time. I thought she wasn't getting enough which was TOTALLY wrong but you live and learn. Anyway we started giving her a bottle at night b/f bed and I failed to realize that I needed to be pumping if I wasn't going to feed her. Well cutting out that feeding caused my AF to return which took a disastrous hit on my supply. Addi would try to feed and literally nothing would come out. I was forced to give bottles and wasn't having much luck with pumping. It was devastating. Her latch got very lazy and I felt like things were coming to an end, and at only 10 weeks. My goal was 6 mos so I was totally depressed. My doc gave me Reglan first since that's the more commonly prescribed drug here in the US. I started to pick up my supply but after one week I had a terrible reaction to it, could not breathe and had to go to the ER, so no more Reglan for me. I had read about domperidone and how popular it is in the rest of the world and how few side effects it has. Reglan has a TON of side effects and I happened to have one of the more serious ones. My doc is young and more progressive so he had no problem prescribing the domperidone for me despite it not being FDA approved. The first pharmacy I called refused to fill it but I found another compounding (meaning they actually make the drug in the pharmacy) who would fill it. I started to notice results within days and by the time Addi was about 11.5 weeks old we were back to straight breast and have been formula free ever since. She got the very rare bottle but my fears of nipple confusion left once my supply returned. It is important to pump consistently and I did for months. I finally filled up my deep freezer and stopped pumping. I actually gave away and entire diaper box full of milk to a friend last week and still have another in the freezer. The compounded domperidone was about $40 for 10 day supply. I filled it for a few weeks before I started looking for a more reasonable alternative. I found the NZ pharmacy from a lady on the Born in Jan board who was trying to relactate after several months of bad formula reactions. My first order arrived about 9 days after I placed it and the price was very reasonable. The drug comes in original packaging and I've never been scared to take it. Oh, I also ordered it from Canada b/f I found out about NZ and it was more expensive and worse, it never arrived. They resent my order and it still never arrived so I made them finally refund my money after about 4 mos so I don't recommend that route. Plus, from the NZ pharmacy you don't need a rx and in Canada you do. The NZ pharmacy sells the generic form of the drug but again, I've taken it for months with no side effects. For me it was the miracle that saved our nursing relationship and now that I'm dealing with all this biting drama and having to keep her off one breast I'm counting on it to help me maintain my supply till we can get through this. If you have some more questions please just ask. I think it's an amazing thing your wanting to do and that baby is very lucky to have a mom like you.
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Old 10-22-2007, 09:11 AM
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Default Re: Domperidone?

great info from kenda for you, and i'm happy your doc is supportive as well.

seems like things are finally on the upswing in at least parts of the country in that regard
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  #6 (permalink)  
Old 10-22-2007, 02:46 PM
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Default Re: Domperidone?

Thank you both so much for your support!
When I called my insurance co to see if they cover it they said they DO, which I find hard to believe. I'm thinking they cover it for stomach issues (I believe that is what the drug is made for) but, they don't have to know why it's prescribed, right?
I'm going to order from the lab in NC that compounds & run it through my insurance. If that doesn't work I'll order through NZ.
Do you think I have enough time? Caleb is due in early Feb.
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Old 10-22-2007, 03:58 PM
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Default Re: Domperidone?

I'm sorry I don't know how long it takes to fully induce lactation.

The mom over on BIJ that was re-lactating said it took about a week to get some milk back I think.
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