The place where I am getting everything done called me just now. I guess they changed their course of action. I still have to go for the MRI tomorrow... but then I have to go to their OBGYN office (all in the same facility- it's like a huge hospital) and get some blood tests done and give a urine sample as well.

What's changed- my appt for Monday. They want to run several tests tomorrow- they want to test my blood for a certain antibody that would possibly cause Ryann to have a low platelet count (because they cant test his blood for it- a low platelett count would cause him to hemorrhage)... they want to test for infection such as Toxoplasmosis and CVP? A few more things I am sure I am missing out... then whenever my appt is on Monday, I will meet with the Maternal Fetal genetic dr, get my u/s, then meet with the Genetic Counselor Dr, and also Pediatric Neurology. we will then go over everything that they find, didnt find, and kind of give me possible outcomes. They wanted Pediatric Neurology to sit in to get their opinion as well in the event anything is found. Again, she ended the convo telling me they just may never know until he is born... all this is just to gather more info and try to find a reason why.

She tell me the good thing they mentioned was that at the time of the u/s they didnt see any hydrocephaly, which is fluid on the brain, which could indicate CP. Thats not to say that they wont find it at the follow up u/s, but they didnt see it initially. And he can recover fine from a bleed in his brain. So theres a little positive info.

I asked her is there a condition that would warrant immediate delivery, and she said at the time no, but thats not to say they won't find something and then it would change. But she did say that she didn't think so....

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~Angela~

Expecting #5!!

Callie ~ 11



Evann~ 5 and Gavinn ~ 3


Ryann Addison 05-09-2008

Wow! Wonder who/what lit the fire under their a$$. It's great that you're finally receiving the treatment you needed from the get go.

Sounds like you have a really busy day tomorrow. Pack lots of water and snacks

GOOD LUCK!

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I am so glad that they are getting things done now! I agree with Zara, lots of water and snacks to keep you going through all of this, I have a good feeling about all of it, you have a ton of people praying for Ryann and you that you both are healthy and safe.
I am glad that they didn't see any signs of hydo at the last u/s, that was one of the major problems with Xander when he had his brain probs inutero.

Update us as soon as you can and let us know how you are doing after all the poking and proding tomorrow.

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Sounds like a very busy day of tests. Good luck with it all. Im glad they are pulling everything out for you. Will be thinking of you.
They are really on the ball now. Wonder why it took so damn long.

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Rachel
Proud Mother of 2 Boys and a Girl
Isaac David - February 2004
Carson Eli - January 2006
Kianna Rachelle - May 2008





***Just Add Baby ACD***

***Host of Baby Dust Grads***

I dont know what happened, but she told me that they have a meeting with all of the high risk dr's and specialists in the state that work for their association and specific department once a month, and that meeting happened to be today, and I was discussed at this meeting. Thats probably why the course of action has changed. She also did tell me that the MRI isnt even the most important piece of info at this moment....

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~Angela~

Expecting #5!!

Callie ~ 11



Evann~ 5 and Gavinn ~ 3


Ryann Addison 05-09-2008

So glad they are going to check everything there is to check that could be relative. That is great. Glad you will still get the full lowdown on their findings Monday, rather than putting it off for another day. Is your SO going with you for one or both of the appts? I always find it better to have an extra set of ears when there is a possibility that there could be lots of info coming my way.

As for the hydrocephaly, if they happen to find anything in that area, don't let it get to you. It doesn't always mean severe consequences. My teaching buddy had a little girl in class that had it as a baby and no one even knew about it, until she had an incident where the shunt got blocked and had to be replaced. She was a good student and had no outward signs that she even had a shunt in place or had suffered with hydrocephaly at all. Just a delightful little girl.

Hope you get lots of rest tonight for your busy day tomorrow.

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Good luck tomorrow, I hope everything goes well.

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Dawn


[

Woohoo...thank the good Lord! Their turnaround and suddenly being so proactive is just absolutely amazing! It seems that your bases will be covered and then some. That's got to be such a relief for you. Best wishes and lots of prayers tomorrow.

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im happy that you have a lot more testing going on now. if the mri isnt the most important piece of information you need right now, what is it? im sure all of this is a bit overwhelming for you, but u will be fine! hugs to you! please update us tomorrow and let us know how things went. i know u wont get any definate answers tomorrow, but still let us know how it goes.

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[img]http://image.lafemmebonita.
com/c/bg693389.jpg[/img]

yep like Carman i have a great peace about it all..I know you've been feeling it too. And how encouraging that the doctors..although they are concerned are not even considering taking him yet! Keep resting, drinking lotsa water and all the other good stuff mentioned.. we'll keep lifting you guys up in prayer (btw I am a night owl! lol.. my hubby was out on a call ..he's a paramedic and I was waiting up for him..tonight i have zero excuse..ok maybe it was the coffee i drank! ha!)